The National Cancer Institute (NCI) is hosting a symposium to explore the impact of personal control of genomic data sharing to research, clinical
care, and patient well-being and engagement. 
NCI welcomes advocates, researchers, policy leaders, and the public to
this symposium, held under the auspices of the Cancer Moonshot. 
The symposium will host sessions on the following topics:
• Motivations for and perceptions of participants controlling their own
data; 
• Facilitating personal control of data sharing – existing approaches and
platforms;
• Risks and benefits to participants and their communities; and
• The role of individuals who wish to share their data in clinical practice and healthcare.
Registration is available for in-person or online attendance. To register,
visit https://events.cancer.gov/participantsharedata.
Please note that registration is complimentary. There will also be an opportunity to submit abstracts for poster presentation during the symposium
Symposium Details
The symposium will take place from 8:00 AM to 5:00 PM ET on September 26, 2019 and from 9:00 AM to 12:00 PM ET on September 27, 2019. This
event will take place in Masur Auditorium in the Clinical Center on the
main NIH campus in Bethesda, Maryland. 
The agenda is still in development, but additional information will be
available in the near future on:
https://events.cancer.gov/participantsharedata.