|The National Cancer Institute (NCI) is hosting a symposium to explore the impact of personal control of genomic data sharing to research, clinical |
care, and patient well-being and engagement.
|NCI welcomes advocates, researchers, policy leaders, and the public to |
this symposium, held under the auspices of the Cancer Moonshot.
|The symposium will host sessions on the following topics:|
• Motivations for and perceptions of participants controlling their own
• Facilitating personal control of data sharing – existing approaches and
• Risks and benefits to participants and their communities; and
• The role of individuals who wish to share their data in clinical practice and healthcare.
|Registration is available for in-person or online attendance. To register, |
|Please note that registration is complimentary. There will also be an opportunity to submit abstracts for poster presentation during the symposium|
|The symposium will take place from 8:00 AM to 5:00 PM ET on September 26, 2019 and from 9:00 AM to 12:00 PM ET on September 27, 2019. This |
event will take place in Masur Auditorium in the Clinical Center on the
main NIH campus in Bethesda, Maryland.
|The agenda is still in development, but additional information will be |
available in the near future on: